In 1989 test test organizations representing constituents with various heritable connective tissue disorders joined together to form the Coalition for Heritable Disorders of Connective Tissue (CHDCT).
The goals of CHDCT are to bring about greater awareness and understanding of heritable disorders of connective tissue in medical professions and in the public at large; to encourage teaching in the schools, to train health practitioners to help identify, diagnose, and treat various heritable connective tissue disorders; and, to foster research. Members of CHDCT believe that research on one disorder can be helpful to many.
Founding member organizations of the newly organized Coalition of Heritable Disorders of Connective Tissue (CHDCT) gathered at a meeting held at the National Institute of Arthritis, Musculoskeletal and Skin Diseases (NIAMS), under Dr. Lawrence Schulman, Director of NIAMS, to formally establish the CHDCT. One of the first goals was to become incorporated. The second goal was (with NIAMS support) to hold a heritable disorders of connective tissue workshop. This 1990 symposium, the first in ten years, sponsored by the NIH/NIAMS, allowed basic scientists and clinicians working on these disorders to discuss the state of the art of research and treatment as well as to determine which areas best benefited by the advanced technology of the last decade.
The goals of CHDCT are:
To bring about greater awareness of heritable disorders of connective tissue in the medical professions and in the public at large.
To encourage teaching about these conditions in medical schools.
To encourage the training health practitioners to identify, diagnose and treat various heritable connective tissue disorders.
To foster research.
To find out more about the coalition,
please explore the rest of our site and contact us at:
Sharon Terry, MA, Co-President,
Coalition For Heritable Disorders Of Connective Tissue
4301 Connecticut Avenue, NW, Suite 404, Washington DC 20008
Priscilla Ciccariello, Co-President