In 1989 test test organizations
representing constituents with various heritable connective tissue disorders
joined together to form the Coalition for Heritable Disorders of Connective
The goals of CHDCT are to bring about greater awareness and understanding
of heritable disorders of connective tissue in medical professions and
in the public at large; to encourage teaching in the schools, to train
health practitioners to help identify, diagnose, and treat various heritable
connective tissue disorders; and, to foster research. Members of CHDCT
believe that research on one disorder can be helpful to many.
Founding member organizations of the newly organized Coalition of Heritable
Disorders of Connective Tissue (CHDCT) gathered at a meeting held at the
National Institute of Arthritis, Musculoskeletal and Skin Diseases (NIAMS),
under Dr. Lawrence Schulman, Director of NIAMS, to formally establish
the CHDCT. One of the first goals was to become incorporated. The second
goal was (with NIAMS support) to hold a heritable disorders of connective
tissue workshop. This 1990 symposium, the first in ten years, sponsored
by the NIH/NIAMS, allowed basic scientists and clinicians working on these
disorders to discuss the state of the art of research and treatment as
well as to determine which areas best benefited
by the advanced technology of the last decade.
The goals of CHDCT are:
To bring about greater awareness of heritable disorders of connective
tissue in the medical professions and in the public at large.
To encourage teaching about these conditions in medical schools.
To encourage the training health practitioners to identify, diagnose and
treat various heritable connective tissue disorders.
To foster research.
To find out more about the coalition,
please explore the rest of our site and contact us at:
Sharon Terry, MA, Co-President,
For Heritable Disorders Of Connective Tissue
4301 Connecticut Avenue, NW, Suite 404, Washington DC 20008
Copyright 2010 © Coalition For Heritable Disorders Of Connective
Tissue Revised March 2010
Senator Tom Harkin
receiving a plaque of commendation from the Coalition of Heritable Disorders
of Connective Tissue.